Into the system…

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Face the Music…

with 11 comments

I think it’s time I admitted something. I started to write about this a couple of weeks ago, but I didn’t feel up to facing the music. I didn’t post about it at the time because I didn’t want my bloke to know, but now this is over I guess I can admit it.

I stopped taking my meds.

I know it was stupid, but I did it anyway. I don’t know why I stopped. It started when I missed a couple of doses by accident sometime in November. I really didn’t notice any difference and started to wonder what would happen if I stopped taking my medication. It is something that has crossed my mind plenty of times, but I’d never really done anything to test it. I know my partner often questions the point of the medication and I often doubt it too. After all, I managed without it during my teens, even when I was unwell.

Anyway. I started forgetting to take my meds or messing with the dose. One day I’d miss the night-time dose. The next I’d skip the morning one or I’d try doubling something or whatever. I wasn’t taking any of it regularly and I wasn’t taking what I should have been.

This continued until I saw Dr N about a month ago. We were discussing increasing the Propanolol and he asked me something about my medication and it just slipped out that I’d been skipping doses. I don’t quite know how I ended up telling him really. I had made a concious effort to keep this a secret, but somehow it just slipped out. He gave me a mini-lecture and seemed concerned, but it was okay. He seemed to understand why I was doing it. He asked me if I’d tell Dr D and although I was very reluctant to do this, I did at our appointment last month. Dr D had little of value to say on the matter and just told me repeatedly to take my medication. This made me less keen on the idea! I don’t exactly have much faith in the man.

After I saw Dr N I did make an effort to start taking my medication again. I had been taking the Propanolol properly, hoping that it would help the headaches and generally I’d been taking the others too, but then the next thing I realised I’d stopped the Lamotrigine and Melatonin completely. I don’t even know when it happened. I just realised I hadn’t been taking any when I noticed I hadn’t used any of my new lot of medication. When I realised I had stopped I didn’t want to start again. I was worried about side effects and decided it was easier just to stay off them and I just didn’t care enough to bother.

Useless Social Worker, J asked me if I’d started taking my meds properly again and I outright lied to her. I seem to be making a habit of lying to her now. I feel bad about it, but I just don’t trust her. She asks me how I am and I tell her I’m fine. It just seems easier.

Then I returned to see Dr N a fortnight or so ago and he of course asked me about the meds. I couldn’t lie to him as much as I wanted to. He could see right through me anyway so I just admitted it. Again he was good about it. Concerned, but understanding. He even went as far as to say he’d probably think the same if he was taking regular medication and didn’t see much benefit to them. Unprofessional perhaps, but he knows me pretty well and I think his attitude is that any intelligent person would question such things.

He did point out though that I was less well than I had been a couple of months before and that I was heading the right way towards admission. He joked that he knew if I needed to be admitted again, it would take the men in white coats to do it. He is right of course. Voluntary admission to Hollins Park is just not happening. I’d consider somewhere else, but I’m not going back there if I can help it. I’ve actually been bad enough to consider that hospital may be the best place for me right now, but I’m not going to rush there in a hurry.

He asked me if I was throwing the pills away or stockpiling and I had to admit I’d been stockpiling. He was concerned that I was planning an overdose, which I guess was a logical assumption. I hadn’t been really though, knowing that Lamotrigine even in those doses is unlikely to cause much damage. Not to say that I hadn’t considered doing it anyway just in case.

He tried to persuade me to take the medication again. We agreed that I would need to titrate the dose back up, but we should do it quickly, unlike the usual 25mg increases used for Lamotrigine. So he didn’t give me another script for the Lamotrigine and sent me on my way with one for the propanolol – which I had still been taking intermittently. I was told to come back when I had used up most of my stock or if I needed to before.

So I reluctantly restarted the meds. My thoughts were confused on the matter. I didn’t want to because I didn’t see the point. In another way I wanted to because maybe restarting the meds so quickly would go horribly wrong and kill me anyway (there is meant to be an increased risk of The Rash). I also wondered if I continued to get worse whilst back on the medication then maybe people will not blame any deterioration on that and I will prove my theory right that the medication is crap. I guess the rational part of me also hoped that things would actually improve again.

I saw Dr N again this week. I told him I’d restarted the medication and he seemed pretty relieved. He said he had been quite doubtful if I would, which is fair enough. I doubted if I would. I think he was pretty worried about what might happen if I didn’t though and I suspect he questioned whether or not he should have been getting the crisis team involved, with a view to calling the men in white coats. I found it hard to talk to him this week though. I didn’t know what to say and was a little vague. I should have been more honest about how things are, but I fear those white coats. I was at the branch surgery too and I always feel uneasy there. I think it’s because it brings back memories of the silly overdose back in September 2008.

He asked if restarting the Lamotrigine was making me sleepy, which was possibly his way of telling me that I didn’t seem with it. I wasn’t really with it, but I didn’t know what to say. I didn’t think it had been. If anything it had increased the insomnia, but then again I may be more tired in the day due to sleep deprivation. I had little to report in the way of side effects, but I’m not sure I’d even notice any if they were there.

So how have I been without the medication? Did my experiment teach me anything? Yes, I have to admit I’ve not been well this last month, but is it due to a lack of medication? I know that everyone is going to blame my deterioration on the lack of meds, but I really don’t think it’s that simple. I think the fact I stopped taking the pills is probably symptomatic of the deterioration. When I stopped, things were already messy. I was very suicidal. I wasn’t thinking clearly. I was having weird dissociative episodes and felt out of control. I was getting worse anyway and because of that I didn’t care what happened to me. Stopping the medication seemed like a logical step.

I think about why I did it and I don’t really have any answers. My thoughts were racing through all sorts of things at the time. I guess maybe I just wanted to accelerate the self-destruction. I think I almost hoped that I’d go truly mad and finally have the impetus to try and off myself again. I’ve been holding on by a thread for so long I just wanted to snap it. I seem to spend so much time depressed lately, that I wondered if it is the medication causing it. In some ways the monotonous, not-quite-so-bad depression is worse than the actual pits of despair. It’s so dull and draining. I was truly fed up of it. I had been a little better, but I still wasn’t well and the knowledge of that was demoralising. If the best I can hope for is moderate-severe depression then I’m screwed. Life really isn’t worth it. I am perpetually suicidal and even the improvement I saw a couple of months ago was not enough to change that. I wanted out and this seemed a way to do it. I knew there were risks involved with stopping the meds and I wanted to take them. I felt awful anyway, so what was the point in the medication?

Part of me also wanted to see if I could induce some hypomania by stopping my medication. I’ve wondered a lot recently about what would happen if I was unmedicated. Would my little ventures upwards continue to escalate without the medication pulling me down? I want to experience the highs as well as the lows. What is the point in living with this awful mood disorder if I only get the horrible side of it. The depression and agitated mixed states, but none of the “nice” highs. I just wanted a change and hoped that by stopping my medication I’d be able to create that.

All the while I did have a small piece of rational mind that questioned what I was doing. I could feel I was getting more out of control, but this rational side was not strong enough to stop the rest of my mind. I think it was also overpowered by a little part of me that hoped this would be enough to make people realise I was struggling. Maybe it would help me to get more support. Perhaps it was really a pathetic cry for help?

Another theory is it was actually a way of stopping me from killing myself. By doing this I was trying to change things. I was trying to prove my medication wasn’t right. I was also trying to see if I could make things better without the medication. I needed a change. I couldn’t carry on the way things were. I was getting impatient again and the way things were going I’d have tried to kill myself out of frustration pretty soon anyway, just as I did when I was in a similar place at the start of the year. I’m annoyed that I didn’t spot the loop repeating itself, but maybe I did and this was my way of changing the course.

I also worry about what people think of me for this. I knew it was such a cliché to stop taking my medication and I hated being that cliché. I worry that people will think I don’t want to get well and that my illness is all my fault and that I’m just not trying hard enough. I worry about having non-compliance all over my notes.

Sadly my foray into non-compliance hasn’t really worked out as I had hoped. The lack of meds didn’t trigger any really nasty side effects. I didn’t get fits, like the patient information leaflet warns. I certainly didn’t get any highs. I just continued the way I was already going, getting more and more suicidal and losing motivation and energy all the time. I didn’t manage to kill myself, possibly because I am too depressed and can’t be arsed. I continued to pretend everything was fine and hid this from almost everyone.

I wonder what would have happened though if I Dr N hadn’t got this out of me so soon. If I’d stayed off the meds longer maybe what I’d secretly hoped might happen would have. I wish I had the chance to find out. I still don’t want to take the medication. I still see very little point. I noticed that I slept better without the Lamotrigine and with it my sleep has got worse again. I’ve felt a bit physically dodgy since restarting, which is a pain, but nothing overly nasty. I didn’t seem to get any withdrawals coming off the meds either. I don’t feel any better now than I was when I didn’t take them, so maybe things would have been the same with or without. It maybe feels like someone is trying to put the brakes on my snowballing descent though. I feel a little more in control, but then again, brakes don’t work in ice and I am not sure they are working right now.

Maybe a little longer and things will stabilise. Medication can take a while to kick in. Dr N suggested we increase the Lamotrigine after Christmas if things aren’t any better. I wonder if it’s worth trying something new instead. Yes, maybe this test has proved the medication does help a tiny bit. Yes, it is by far the best medication I’ve been on so far, but I am not sure it’s enough. If all the medication can manage is to keep my head above water, then what is the point? If things continue as they were then this will probably only happen all over again. That or I’d try and kill myself in frustration. It’s very true that you are at more risk of killing yourself when you are getting better. I proved that back in February.

So.. I’ve got that off my chest now. I am worried if there will be any backlash. I hope not.

11 Responses

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  1. No backlash from me x

    Kate

    Saturday, 19th December 2009 at 4:39 pm

    • Thank you.

      Lets be honest though. Was I really expecting any from you? ;)

      xx

      intothesystem

      Saturday, 19th December 2009 at 4:57 pm

      • There is that ;) Just y’know, in case there was gonna be…

        Kate

        Sunday, 20th December 2009 at 8:33 pm

  2. Totally get it, I stopped meds end of Sept, told Dr on friday. He said it was my choice but not to rule out going back on them.

    trio25

    Saturday, 19th December 2009 at 5:49 pm

  3. I used to feck around with my medication all the time. It didn’t work so why did I need to work with it? Anyway, you know what happened next, I got iller than ever, risked hospital and then by chance got on the right drugs. There is a wonder drug out there for you too, it’s just hard to see the point taking things that have no effect.

    Honesty is good.

    Take care youx

    eccedentesiast

    Saturday, 19th December 2009 at 9:34 pm

  4. I’ve messed around with my meds and been thoroughly told off for it when I was found out so no backlash from me aither.

    Just hugs.

    XXX

    Karita

    Sunday, 20th December 2009 at 7:16 pm

  5. *Giggles* Fuck ITS we’re all the same eh? I used to skip taking Lamictal because after 48 hours I used to be bouncing off the walls. Obviously as a mood stabiliser it totally messed me up the 48 hours afterwards, but boy was it worth it.

    The thing is, it’s all a rolling situation isn’t it? It does only work properly if you keep taking it and taking it, and I found I built a tolerance up quite quickly. Oh well, if you were reading this time last year you’ll remember why I came off the stuff altogether. I never used to think it worked particularly well, but then when my body weight hit a certain point I was immune to the AD I was on too.

    It’s funny how we become experts on our own medication. I often wonder if all Shrinks should be forced into being patients just to get a taste of what it’s like.

    Lola x

    Lola Snow

    Tuesday, 22nd December 2009 at 9:34 am

  6. I am glad you have wrote a post about it, I’ve been worried about you and the meds thing. I’ve not been so good at taking mine of late, I don’t know what’s gone on I use to be so strict but things have just gone a little haywire…

    Alison

    Wednesday, 23rd December 2009 at 8:58 pm

  7. Definitely just hugs and support – no backlash x

    Em

    Wednesday, 30th December 2009 at 1:07 pm

  8. […] there was plenty of backlash from the confession about my meds. I had feared it, but hoped it wouldn’t materialise. My bloke was upset. As is often the case […]

    Backlash… « Into the system…

    Friday, 1st January 2010 at 2:09 pm

  9. […] blog, even though her TWIM award suggests that we do. Sadly there was plenty of backlash from the confession about my meds. I had feared it, but hoped it wouldn’t materialise. My bloke was upset. As is often the case […]


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