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Posts Tagged ‘career

On my own…

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My care-coordinator, C came to see me on Thursday. We weren’t meant to be seeing each other until Monday when I had my appointment with my psychiatrist, Dr M, but C called me on Wednesday to tell me she wanted to go through the updates to my CPA and risk assessment beforehand. When she arrived she told me the real reason she had came was to tell me she is leaving. It was nice that she wanted to do this personally and made the effort to make the appointment to see me before she went, but I’m sad that she’s going. She’s been asked to work in a CAMHS role, which is what she trained in. I think this is really positive for her and she seems excited about it, so I’m happy for her. I’d just got used to having her around and she was so much nicer and more helpful than useless SW, J, who I had before, so it is a shame. It was quite nice to know she was there if I needed her as I had faith in her, but I think I’ll be okay anyway.

I was asked what I wanted to happen now. I had the option of being assigned someone new or having no one assigned and letting Dr M and my GP, Dr N manage things for a while. I decided to go for the latter. I’ve never found the CMHT overly helpful and I am not sure I really need a social worker at the moment, although it was nice to have C there, just in case. To be honest, I think not asking for another person is more about trying to avoid another useless SW like J was. She did more harm than good I think. I’m not quite sure about the prospect of being a little on my own, but I think it will be okay. I’ve been told I can ask for one at any point and someone will be assigned, so this seems to make sense. I think whilst I’m just waiting to see if things stabilise there isn’t that much to do or say. It just seems to be a case of waiting to see if the improvements hold out. I do wonder if it will be helpful to have someone involved when I am trying to return to work, but we shall see what happens.

Saturday was a bad day. I guess one had to come along again at some point, but it was worse than I’d expected. I woke up feeling a little dodgy in a physical sense, but after a silly argument with the bloke things went downhill. I was crying almost non-stop for hours and when I wasn’t crying I only felt capable of staring into space. I couldn’t think and felt completely exhausted. It got to the stage where I couldn’t really speak properly and when we went to Morrisons I was struggling to do much more than walk around like a zombie, whilst my bloke did the shopping. Something just wasn’t right. I felt depressed, but I didn’t even have the energy to be suicidal. I was just devoid of anything. In the end I couldn’t wait to get to bed so I could start a new day and hope it would be better.

I felt a little better by Sunday morning and by the evening I felt okay again, so hopefully that has passed and won’t happen again. I don’t know if something just snapped or if crying wore me out, but it wasn’t good. I just felt so awful and it was horrible to be back in that place. I’ve not experienced that sort of catatonic depression much as I have a tendency to irritability and agitation, but it is scary when it happens. I don’t know how anyone gets through days or weeks or months of that. I guess the fact is, you’re so down it is impossible to do anything but wait. You don’t have the energy to end it.

On Monday I saw Dr M again. It was a bit of a nothing appointment really. We discussed how the last 6 weeks have gone, but there wasn’t much to be said. Things are still much the same as when I last saw her. I am a lot, lot better, but not 100%. Still getting the odd bad day that catches me off guard, but most of the times things are in the realms of normal. We talked about possibly increasing the Reboxetine again, but she was inclined to leave things as they are for now. She wants the option to manoeuvre the dose up again in future if things dip over time or if  I struggle whenever my therapy referral ever comes around. If she puts it up now, she wouldn’t really be able to increase it much more without pushing the side effects up into unmanageable territory. She asked if I’d heard anything about therapy, which I still haven’t. It’s getting a bit ridiculous because it gets pushed back further and further, but it doesn’t surprise me at all.

We talked about the fact I was seeing occupational health today and what I felt about it. She asked me when I next wanted to see her, which I felt was positive. I was given the option of two weeks, two months, whenever or never again. This would never happen with the CMHT, although I’m not sure how serious she was about never again! I suspect she may have had something to say about it if I chose that option. We decided I’d call her when I have decided though, based upon what was said at occy health and whatnot. She was good to point out I can call her whenever if I need to see her between appointments. I’ve been pleasantly surprised at how things have changed between me and Dr M. I didn’t like her at first and I really got the feeling she didn’t like me, but now she’s seen improvements and got to know me a little better and not the me she met when I was in hospital, things have improved. We shall see how things go. I don’t know what happens when I am passed back to the CMHT or discharged by her, but at the moment I’m appreciating the stability and glad I’m not being passed from SHO to SHO.

So today was occupational health. I have been worried about this one because the nice consultant I’ve seen in the past has left the firm. I have to confess to googling the new guy (another Dr G, so not sure I’ll be using that moniker for him) and I found out he has worked for the Health & Safety Executive in the past and has a more safety-focussed history than the last doctor – I got the impression ladders and chemicals were more his thing than mental health, but I could see he was an experienced occy health consultant, so he was going to have come across psychiatric patients at some point in his career. He seemed nice enough. Quite softly spoken and very keen to point out that he is not on anyone’s side and that he has my best interests and health in mind, so I guess that’s good to know. I’ve found that to be true for all of the occupational doctors I’ve seen. Every time, they’ve been supportive and they are not just trying to get me back in work. A pleasant contrast to the DWP/Atos Origin lot I guess, who only seem to care about declaring you fit for work (although to be fair in my case they didn’t).

We discussed how things were compared to last time I saw Dr R. In general, things have improved a little and the improvements have been maintained so that is good. He asked me how I felt about work and occupational health. I confessed to being in two minds – half the time itching to get back and on bad days, worrying that I’d never be well enough. He said that was to be expected, which I guess is true. I was pretty surprised that early on in the appointment he made it pretty clear he didn’t think I’d be returning any time soon. He feels it will be a long time before I go back properly and that I need to show stability for a while before we consider it. I was hoping to go back in some capacity soonish, so I’m disappointed really. I guess I have to slow down and wait and see how things go. I am aware that I shouldn’t rush things, but at the same time it’s about balance, because if I wait too long I will begin to feel useless and get frustrated.

He also said that a return will be very slow when it comes and it could be a very long time before I’m back at work properly. At first it will be just dropping into the office a couple of times to say hello and then maybe working an hour or two a week, building that up to a few mornings or afternoons and then we’ll see. I suspect I will get impatient with that approach, but I know it is what we have to do. I know though that I have a tendancy to do more than I’m meant to, so it will be difficult I think.

Now that I’ve been told I definitely can’t work yet, I feel a bit stuck. I’m having to wait and be patient and I am getting itchy. I had thought that I’d be going back sometime this summer. I expected to be setting a date to start a phased return, but I’m apparently not even ready to do that yet. I have to wait a couple of months before I see him again. If things have improved/stabilised then we can “possibly” start to plan a return. He did suggest three or four months before I next saw him, but I felt that seemed too far away. I’m worried I’d miss my window of opportunity to have some “normal” life. He agreed on two months or so unless I go downhill again in that time. He said I deserve to have a bit of happiness first, which I guess is a nice thought, although it also makes me worry he feels I won’t stay well if I do ever go back to work. I also wonder if I can be really happy if I’m not working. I want things to be normal. I want a career. I want to stay well.

In a way it is good. I know that I don’t have the worry of going back to destabilise things whilst I’m still not 100%. Maybe the therapy assessment will come through in time. It might be good to follow Dr R’s recommendation that I wait to see how I get on with therapy before I return to work. I don’t hold out much hope on that one though.

I guess this time of year is the best to be off too. Summertime. I won’t have to worry about taking time off for holidays. I can make the most of the sunshine, when it happens. I felt awful for most of last summer and I didn’t appreciate it. I am appreciating the sunnier days now.

I guess I can also stop feeling guilty and worrying about being on ESA and in the support group. When I have a good day and I feel normal, I wonder why I’m not at work. I am in the support group, which means I am meant to be too ill or disabled to ever consider seeking or returning to work. Until recently I thought that was the right decision, but as things have improved and I have got keen to return, I wasn’t sure I fitted that criteria any more. I always hated the thought that I was too ill to consider working, even though I knew it was true, but I find it even harder now I am not so sure. Before, I did fear I’d never go back. I couldn’t see any sign of improvement, but I hated the fact that others didn’t have much hope of improvement either. Now I can see that improvement I want to work. I loved my job and I miss it more than ever now. To be told I’m still not well enough to consider working is sad and hard to admit. The upside is though I should stop worrying they will accuse me of benefit fraud. I am not allowed to work even if I want to, so I have to accept that. Without the blessing of Occupational Health I can’t go back.

I just can’t shake off the feeling I am being held back, but at the same time I need to stop myself trying to run before I can walk. I’ve been off work for two years and during that time I’ve been very ill. I know that. 6 months ago I was in hospital. A few months ago I was still threatening to kill myself. Things have improved a lot in a short period of time, but unfortunately that doesn’t mean they can’t change back in a short period of time either. I hope they won’t. I don’t think they will, but it seems I have to prove that these improvements are going to hold out and I can reach some form of stability, before I can consider myself well.

Hmm. We shall see. We shall see.

p.s. I did a quick edit on this post on 9th June. I ran out of time yesterday so the last couple of paragraphs had been somewhat rushed and I didn’t say everything I wanted to. I also didn’t tag things properly. There is still more I can say on this, especially as I spoke to HR today, but I will leave that for another post.

Busy, Busy, Busy…

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For someone that doesn’t work I seem to be awfully busy at the moment.

And it seems I won’t be going back to work for a while.

My consultant had been pretty keen for me to contact my employer to try and look for a strategy that would see me getting back to work, or at least to get me back in contact with them a little more. It was suggested that perhaps I could help out with some corporate citizenship work or at least have a contact in the area I could meet up with to discuss work. All of my contact has been with the HR team who are based in London. As I am not allocated to a project I don’t have a manager at the moment, let alone one in the North West. I don’t even have a “Career Counsellor” right now as mine is on maternity leave. So I’ve had very little contact with work and I’ve only been into the office once in the last 18 months (to get my laptop upgraded). The place has become completely alien and the thought of trying to go back is pretty scary. I don’t think Dr M realistically thought I’d be ready to go back in the immediate future, but she wanted me to consider doing something to give me hope of going back.

So I contacted my HR rep to see what she thought. She needed to look into this and wanted me to go see Occupational Health before she made any decisions. She didn’t want to allocate a new Career Counsellor unless I was actually going back, so that wasn’t an option, but she did say she’d look at finding a Manchester contact for me. She wouldn’t agree to the idea of me going into the office or helping out unless there was an OH report which supported this. I suspect their liability insurance wouldn’t be too happy if I was on sick leave, went into the office and then I hurt myself or something.

So I was referred back to Occy Health. An appointment was arranged and I saw Dr R on the 18th. I’d seen him before, 18 months ago. He had been nice last time and had a lot of experience in psychiatry, so I was glad it was him again. He remembered me and I tried to update him on what had happened. I have a document saved on my computer which covers all the main events of my “Mental Health History”, so I took this with me to refer to. I think he was pretty shocked at what had happened since I’d last seen him. At the end of the appointment he said that when he saw me last he’d expected me to have a pretty rough time over the coming year or so, but he’d never expected it to be as bad as it was.

He mentioned a lot of the usual occupational health stuff. Things about how work is generally good for people and that I should be encouraged to go back as soon as possible. He quoted the statistic that 50% of people who are off work for more than 6 months never return (Scarily, 75% of people off for over a year and virtually none of those off for two years or more ever return) and he commented on how long I’d been off. He said he was concerned about my chances, but he was hopeful that at least I have youth on my side.

He seemed genuinely worried that I may be dismissed due to incapacity if I was off much longer. I am worried about this because my Permanent Health Insurance payments would cease if that happens. He said he’d hate to think I’d have a life of benefits ahead of me. Not exactly what someone needs when they are struggling to handle the thought of being alive. He warned that with such a long absence and dismissal for ill health, I would be nigh on unemployable, which is a pretty depressing thought. I should have a great career ahead of me and instead I am dealing with the possibility that is over. I hope not.

We discussed whether or not I could go back to work. I don’t really think I am ready. I’ve only been out of hospital for about a month. My medication is still being adjusted and I am struggling with side effects and anxiety. Things are so unpredictable that I just don’t know how I can plan to go back so soon. I was pretty surprised when Dr M brought up a return to work in the first place, but I understand that I do need to go back as soon as possible and was willing to at least see what could be done.

He agreed with me though. He wants me to be fairly stable for a couple of months before he considers approving a return. He seemed a little surprised that I had even been referred to him so soon after coming out of hospital. He was uncomfortable with pushing me back too soon because there is too much at stake.

If I went back to work for a little while and struggled, ending back on sick leave, then I would not only lose my ESA for 6 months, but I’d probably end up losing my job. They’d be more likely to dismiss me if I failed to complete a phased return. Of course there’s also the very real risk that it would tip me back over the edge and I’d try and kill myself. Not exactly something anyone would want to risk encouraging.

We also discussed the fact I am waiting for therapy and I’m likely to find that pretty hard going. It would not be good for me to go back and then to start therapy. There is good chance that it will make me worse, before it makes me better and we wouldn’t want that to risk my return to work. He’d rather that I knew at least what was happening with my therapy referral before I go back.

He did agree though that we should be doing something to normalise work and the office a bit more. I need to be in contact with HR and I need to go into the office occasionally before I try to go back. At the moment I feel like I don’t belong there and I hardly know anyone. It would be good if I could get used to going in before I try and do any work there. He agreed that helping out with the occasional task might also be helpful and a good way of keeping me in touch with work. The more we can do to convince my company that I do still want to work for them and that there is a good chance that I will again, the better.

So that’s the plan. Try and get more in touch with work, keep myself busy and doing enough work related tasks as possible and lots of hoping that I will get better and stay well long enough for us to consider a return. I will probably see him again in a few months, all being well.

I left fairly pleased with the outcome. Dr R seemed to understand my predicament and agreed that I wasn’t ready to return. I am a lot more worried about my future though. He was genuinely concerned that I will end up jobless and moneyless. At the moment financially we can cope with being on sick leave, but if I lost my PHI payment or ESA then we’d really struggle. I am comfortable with the fact I have a job to go back to with a company that has treated me well. I’m pretty scared that this might change. I don’t know how I’d find a new job and try and get back to work all at the same time.

The report arrived last week and was pretty much as I’d expected. My HR rep seemed fairly happy with the report, although perhaps a little disappointed that I am not ready to return. She called me today to find out if there was anything else she could do to support me. I have been given a contact in the Manchester office now and I’m meant to be talking to her tomorrow. It was suggested that I talk to her about things I can do in the Manchester office to give me something to do and to give me a taste of work. I need to build up my confidence and remind myself that I can actually do that job. I worry that I’ve lost my ability to work. I am not as sharp any more. I’m so slow and unproductive. I struggle to concentrate and think. I worry I will just not be up to the job.

We will see. If I am to get through all of this I need to go back. I loved that job and I want to go back. I just hope that I can. I am very scared that I won’t.

Stream of Conciousness…

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I started this post on Monday, but didn’t get time to finish it. It’s now Sunday! I don’t know where my weeks are going. I keep snatching five, ten minutes or so to write, but it takes me half that time to work out where I was before. I keep wishing I could write more, but other things get in the way. I guess more accurately I could say another person gets in the way. My bloke is still not too keen on me spending time on here and that means I usually have to fit it in when he’s not around.

At Creative Remedies on Monday we were asked to write. To write and to keep writing whatever came into our heads for three minutes. I wrote something private, something which I had thought about writing on here for a while. My thoughts were about how I come across at Creative Remedies. I behave like I used to at work and at uni. Friendly, helpful, bright, but hiding how I actually feel. There is a front there that hides the illness. An act. I feel like I have two halves. One outgoing and intelligent, the other ill and flawed. One bright, one dark.

I soon wished I hadn’t have written this. The next step of the exercise was to place our work in a pile on the table. Each one would be passed onto someone else who would then highlight the bits they most liked. The idea was to give us suggestions of how we could turn our stream of conciousness into something a little more creative. I didn’t want to share these inner thoughts. I didn’t want to let anyone in and break down the front. It was made even worse because my notebook is distinctive so whoever got it would know it was mine.

I felt almost sick as I handed over my book. I was given someone else’s piece. Theirs was fairly personal too, but completely anonymous and it gave me no real idea of the context. It didn’t let me in like mine would let someone else in. I was jealous of the guarded nature of their writing.

I could see who had mine. They were writing fervently on my piece. I worried about what they thought. They hesitated to pass it back still writing away. She glanced over at me and mouthed the words “is this yours?”. I had to reluctantly nod as she brought it over to me. Everyone else was scrabbling away at the pile trying to find their own.

I looked at her words. They were kind and expressive, but I still felt a little violated. She had liked my writing, yet I still felt uneasy. She was worried for me. She could feel the sadness and emotion in my words and wanted to comfort me. She later asked me if I was okay. It felt strange and I wasn’t comfortable with her concern. I don’t know that I deserve it.

I know she will never see me in the same light. She is the one person that knows the façade isn’t real. She will look at me with suspicion wondering what is behind the act. Wondering how I really am. I feel like I’ve been found out.

It’s weird how I can write here, knowing anyone could read this, yet I am so uncomfortable. It’s weird how I’m actually considering dropping my anonymity on this blog, yet I didn’t want to drop the act with one person. How would I feel if the same person came along and read all of this? I don’t know.

I don’t know how I really feel about these two sides. I guess in some ways the act shows I am making progress. I can hold myself together in front of people now. I can portray a sense of capability and confidence.  I can actually do things and at times I even enjoy them. There have been times in the past year or so when there was no way I could hide anything and enjoyment was a foreign concept. I was a mess, unwell and visibly so. That’s not true any more.

Yet, I am not sure it’s a good thing. I wasn’t well a year ago when I was first admitted to The Priory and I behaved the same in therapy. I was the sensible, level headed, friendly one. I spent more time giving others advice than I did talking about myself. I was the helpful, confident person. People even wondered why I was there. I seemed fine. I wasn’t.

I don’t really like the act. I don’t like its return. I have worked so hard in therapy to break it down. To be more open and honest about how I feel. To be more true to myself. For the therapists at The Priory, I was making progress when I started to talk about myself. I was chastised when I went into helpful, clever mode. I wonder if I should chastise myself when I act like this now.

At times I wonder if the act was what broke me in the first place. The act was a problem before, back when I was at work. I kept going, working harder and harder to hide how I felt. At times fuelled by unidentified hypomania, at other times fuelled by denied depression. I didn’t want to admit I couldn’t cope. I didn’t want to fail. I wanted to be confident and capable and not at mercy of emotions or illness. I drove myself into the ground until I snapped and my world fell apart.

I am worried I will do that again. I have been doing new things and taking on new projects over the past few weeks. I have ideas, I want to do things, I want to be successful. It’s a familiar feeling. My life has been full of periods where I take on new things and projects, but more often than not I take on too much and cannot cope. With hindsight some of these periods can be clearly attributed to hypomania, but others I am less sure. I wonder if it is just my personality. I don’t want to immediately see everything as something to be pathologised, yet I also want to learn from the past. I need to recognise the patterns and change them. I don’t want to keep crashing head first.

I don’t know what my mood is doing at the moment. People ask me how I am and I don’t know how to answer. I’m depressed, yet am I? Yes, the signs of depression are there. I feel numb, empty, suicidal. Negative thoughts, anxiety, paranoia too. The physical signs are out as well. Headaches, insomnia, tiredness. It all points to depression, but it’s not the whole picture. I am excited about new projects, interested in things (albeit not everything), doing stuff. Where is the anhedonia? I don’t think it’s a mixed state either though. Not in a classic way. I am not really sleeping, but I am tired with it. My thoughts race, but no more than is really usual for me. I am a little on the snappy, agitated, quick-to-anger side, but not physically agitated or excessively so. I don’t feel like things are going too fast. yet. I wish my mind would make it’s mind up. I feel almost lost within my mood.

Going back to the topic of anonymity and this blog. I don’t really want to be anonymous any more. I am not ashamed of my illness and I think it’s so important people are open and honest about these things. We can’t break down stigma if we’re too afraid to talk openly about mental health.

I am not even worried about employers googling me. I have no intention to leave my company any time soon. Even if I was looking for a new job, if a company didn’t want to employ me after reading this then I wouldn’t want to work for them anyway. This may limit my career in future, but it’s something I’m willing to take the risk on.

There is a problem though and it’s my family. I am not sure I am willing for them to know how I really feel. I don’t want them to worry. I know my partner reads this already, but with my parents I am even more economical with the truth. I have never been open with them and I’m not sure I’m ready to start. I guess it is doubtful they will ever google me and find this anyway, but it is still a risk.

I realised though recently it’s not even that which is the main problem. It’s actually the stuff about my sexuality I’m most scared about. I thought I was comfortable with it. I thought I’d worked through everything a few years ago when I really went through a crisis of identity. I haven’t. I am fine with coming out knowing the people I am talking to are open minded, but I am not so sure about the rest of the world. More specific I’m not so sure about those closer to me. It doesn’t hurt if some stranger says something horrible, but if it’s someone I know it’s different. I know my mother can be quite homophobic and I suspect her opinions on bisexuality are even worse. I don’t want her to find out. I have always said that she doesn’t need to know and what she doesn’t know won’t hurt her. I suspect other members of my family would be even worse. I just don’t think I can face it.

I realised the other day that I’m not as comfortable as I’d like with my sexuality in general. The other night I was at the pub with a friend and somehow we ended up talking about gay couples. I mentioned a girl I know who used to be in a gay couple and she now goes out with a bloke. She made some comment about him “turning her” and I pointed out that she could be bisexual. She seemed a little taken aback by that and I didn’t know what to say really. It could have been the time to be honest myself, yet I was uneasy with her reaction. I wish I was comfortable enough to be completely “out”, but I guess I’m still not there.

I guess I could always go back and censor myself. I could make any mention of my sexuality private and I’d be safe, yet I don’t want to. I guess I could throw caution to the wind, face my fears and all of that, but I’m not sure I can do. I don’t know what to do.

Pathways to Work…

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A couple of days ago I got a letter from the local jobcentre asking me to come in for a “Pathways to Work” interview in two weeks time. The Pathways to Work scheme is designed to get people of incapacity benefits (IB or ESA) and back into work. It is geared at people who do not have jobs and the support offered is all about work experience, improving skills and finding a job. For someone who already has a job but is just too unwell to work, this is obviously a complete waste of time.

The literature that came with the letter was even more frustrating. There were a number of “success stories” of disabled people who had successfully got into work through the Pathways to Work scheme. The disappointing thing was all of these people had got minimum wage jobs in local supermarkets, washing dishes in kitchens or working in DIY stores. There were no teachers, lawyers or accountants. No doctors, nurses or IT consultants. No one was in a managerial position. Everyone was in a basic entry-level role, with few prospects for career progression and no doubt earning very little. I know for some people, a job in a supermarket is a massive achievement, but for many it is a massive step down. Not everyone on incapacity benefit has had a poor education or learning difficulties. Some of these people are highly intelligent, highly employable and have been previously very successful until they became ill or disabled. Surely these leaflets are not providing a positive image of disability? The leaflets should be saying, “look, you’re disabled but that doesn’t mean you can’t be successful and get a great job”. Instead they seem to say, “Oh, you’re disabled so you are obviously only capable of stacking shelves in a supermarket”. It is as if disabled people aren’t worthy of aspirations and successful careers.

This poor image of disability is reinforced by the services offered. Improve your CV. Training opportunities to improve your skills and employability. Work placements and buddy schemes. Money for attending job interviews. All of these things suggest that disabled people aren’t employable and need all the help they can get to find a job. Disabled people clearly aren’t capable of thinking for themselves and writing their own CVs. It may be true that in the current climate everyone looking for a job needs help, but this all seems very patronising and demeaning.

The other impression you get from the leaflets was the familiar story that people on incapacity benefit should just pull themselves together and get to work. There was a real sense of the Government’s displeasure about people being on disability benefits. On the first page it states that Pathways to Work is a key part of the Government’s plans to get one million people off incapacity benefits by 2015. Is it really feasible that one million people will recover from their disabilities? In theory it would be great if one million people became well enough to get back into work, but to me, the answer is not Pathways to Work. The answer is improved health care; quicker access to therapy for mental health patients, shorter waiting times for knee or hip joint replacements, more research into treatment for conditions like fibromyalgia, MS and chronic fatigue syndrome. People need successful treatment and support that will help them to recover and manage their condition. Help finding a job or gaining work experience isn’t going to make them well. Yes, working can improve well being and confidence, but for many it is just not an option.

Disappearing Posts…

with 5 comments

Some of you may have noticed that my posts disappeared yesterday for a while. My bloke and I had an argument and in order to hurt me, he signed into here and deleted my blog. Thankfully he had the nouse to back it up first, but I was still upset and felt violated.

I saw Dr N this morning. As always it was good to see him. He always gives me time and is understanding. We talked about various things, including the arguing and anger, work and the CMHT. I got my script and I now have my melatonin so here’s hoping I get a decent nights sleep soon.

He is still keen for me to go back to work, but I just don’t know how I can. I am still as low as I was last May when I was signed off initially. I can’t handle even the smallest thing and I just snap and lash out. I’m worried the stress would tip me over the edge and I’d end up hurting someone or killing myself. Last night I dreamt I was at work and I hit my old boss. It was horrible. I hate that vision of myself and worse, I know it is close to reality. I suspect I wouldn’t last a week, even on part-time hours. I really don’t want to go back before I’m ready, yet I don’t know if I will ever know when I’m ready. The longer I leave it, the harder it is getting.

I am getting frustrated at being left behind and the way this illness has ruined my career. If I’d been well I’d be promoted this September. I am being left behind by my colleagues that started with me. Even worse, people that started after me and who were not as good at their job as me are being promoted ahead of me. I feel like a failure.

I fear returning to work and people’s thoughts about me. I fear the questions about my absence. I fear people’s confusion over why I’ve been in the company over 2 years, but have not been promoted to the next level. I fear people will think I’m useless because of that.

So far I’ve had some fairly negative reactions to my time off from work due to illness and that both upsets and worries me. I feel that I’ve lost people’s respect. What if I can’t find a new project because every manager is too worried about my sickness record? What if they treat me differently?

There is part of me though that is dying to go back. I want to get out of the house and start my life again. I want the freedom and independance that work will give me. I want the social life that work gave me. I want the daily routine. I want a reason to carry on. I’m fed up of this illness ruining my life. I want to go back and be better than ever.

I know that going back would not be the same. I loved my old job, but this wouldn’t be my old job. I will be working on a new project with new people. At first I will not even be on a project, which will be strange and difficult. I don’t want to return to a watered down version. A phased return would be painful for me, even though I know it is for the best. I want an exciting project and want to be in the thick of things. I don’t want to do pointless activities for the sake of it. I don’t want to be stuck in the Manchester office all the time. I don’t want to be learning how to do my job again. I am worried I just won’t be as good at it as I used to be. I am not as sharp and find everything so difficult.

When I went back to my old role for a few days last August, I found it unbearable not being able to do my old job. I found it unbearable knowing that someone else was now in control. I won’t be going back to the same project this time, so maybe that won’t be a problem, but then I’m scared about starting over again with something new.

There are also the small issues of the finance side of things. If I go back my permanent health insurance would be stopped. Initially it is complicated as I won’t be working full hours, but I’d be on some form of pro-rata pay. Also I’m currently applying for ESA. If I tried to go back to work and found I couldn’t manage it, I wouldn’t be eligible to claim again for another 28 weeks. It’s not exactly an incentive to try and go back before you are ready.

I guess we shall see what happens. I am signed off for another 6 weeks or so anyway so won’t be deciding before then. Dr G said yesterday she doesn’t think we can consider it until at least the end of September and I’m not sure I’ll be ready then. I will also have to attend an Occupational Health appointment before they let me back. OH of course might decide that I’m not well enough anyway.

Written by intothesystem

Thursday, 13th August 2009 at 12:36 pm