Stream of Conciousness…
I started this post on Monday, but didn’t get time to finish it. It’s now Sunday! I don’t know where my weeks are going. I keep snatching five, ten minutes or so to write, but it takes me half that time to work out where I was before. I keep wishing I could write more, but other things get in the way. I guess more accurately I could say another person gets in the way. My bloke is still not too keen on me spending time on here and that means I usually have to fit it in when he’s not around.
At Creative Remedies on Monday we were asked to write. To write and to keep writing whatever came into our heads for three minutes. I wrote something private, something which I had thought about writing on here for a while. My thoughts were about how I come across at Creative Remedies. I behave like I used to at work and at uni. Friendly, helpful, bright, but hiding how I actually feel. There is a front there that hides the illness. An act. I feel like I have two halves. One outgoing and intelligent, the other ill and flawed. One bright, one dark.
I soon wished I hadn’t have written this. The next step of the exercise was to place our work in a pile on the table. Each one would be passed onto someone else who would then highlight the bits they most liked. The idea was to give us suggestions of how we could turn our stream of conciousness into something a little more creative. I didn’t want to share these inner thoughts. I didn’t want to let anyone in and break down the front. It was made even worse because my notebook is distinctive so whoever got it would know it was mine.
I felt almost sick as I handed over my book. I was given someone else’s piece. Theirs was fairly personal too, but completely anonymous and it gave me no real idea of the context. It didn’t let me in like mine would let someone else in. I was jealous of the guarded nature of their writing.
I could see who had mine. They were writing fervently on my piece. I worried about what they thought. They hesitated to pass it back still writing away. She glanced over at me and mouthed the words “is this yours?”. I had to reluctantly nod as she brought it over to me. Everyone else was scrabbling away at the pile trying to find their own.
I looked at her words. They were kind and expressive, but I still felt a little violated. She had liked my writing, yet I still felt uneasy. She was worried for me. She could feel the sadness and emotion in my words and wanted to comfort me. She later asked me if I was okay. It felt strange and I wasn’t comfortable with her concern. I don’t know that I deserve it.
I know she will never see me in the same light. She is the one person that knows the façade isn’t real. She will look at me with suspicion wondering what is behind the act. Wondering how I really am. I feel like I’ve been found out.
It’s weird how I can write here, knowing anyone could read this, yet I am so uncomfortable. It’s weird how I’m actually considering dropping my anonymity on this blog, yet I didn’t want to drop the act with one person. How would I feel if the same person came along and read all of this? I don’t know.
I don’t know how I really feel about these two sides. I guess in some ways the act shows I am making progress. I can hold myself together in front of people now. I can portray a sense of capability and confidence. I can actually do things and at times I even enjoy them. There have been times in the past year or so when there was no way I could hide anything and enjoyment was a foreign concept. I was a mess, unwell and visibly so. That’s not true any more.
Yet, I am not sure it’s a good thing. I wasn’t well a year ago when I was first admitted to The Priory and I behaved the same in therapy. I was the sensible, level headed, friendly one. I spent more time giving others advice than I did talking about myself. I was the helpful, confident person. People even wondered why I was there. I seemed fine. I wasn’t.
I don’t really like the act. I don’t like its return. I have worked so hard in therapy to break it down. To be more open and honest about how I feel. To be more true to myself. For the therapists at The Priory, I was making progress when I started to talk about myself. I was chastised when I went into helpful, clever mode. I wonder if I should chastise myself when I act like this now.
At times I wonder if the act was what broke me in the first place. The act was a problem before, back when I was at work. I kept going, working harder and harder to hide how I felt. At times fuelled by unidentified hypomania, at other times fuelled by denied depression. I didn’t want to admit I couldn’t cope. I didn’t want to fail. I wanted to be confident and capable and not at mercy of emotions or illness. I drove myself into the ground until I snapped and my world fell apart.
I am worried I will do that again. I have been doing new things and taking on new projects over the past few weeks. I have ideas, I want to do things, I want to be successful. It’s a familiar feeling. My life has been full of periods where I take on new things and projects, but more often than not I take on too much and cannot cope. With hindsight some of these periods can be clearly attributed to hypomania, but others I am less sure. I wonder if it is just my personality. I don’t want to immediately see everything as something to be pathologised, yet I also want to learn from the past. I need to recognise the patterns and change them. I don’t want to keep crashing head first.
I don’t know what my mood is doing at the moment. People ask me how I am and I don’t know how to answer. I’m depressed, yet am I? Yes, the signs of depression are there. I feel numb, empty, suicidal. Negative thoughts, anxiety, paranoia too. The physical signs are out as well. Headaches, insomnia, tiredness. It all points to depression, but it’s not the whole picture. I am excited about new projects, interested in things (albeit not everything), doing stuff. Where is the anhedonia? I don’t think it’s a mixed state either though. Not in a classic way. I am not really sleeping, but I am tired with it. My thoughts race, but no more than is really usual for me. I am a little on the snappy, agitated, quick-to-anger side, but not physically agitated or excessively so. I don’t feel like things are going too fast. yet. I wish my mind would make it’s mind up. I feel almost lost within my mood.
Going back to the topic of anonymity and this blog. I don’t really want to be anonymous any more. I am not ashamed of my illness and I think it’s so important people are open and honest about these things. We can’t break down stigma if we’re too afraid to talk openly about mental health.
I am not even worried about employers googling me. I have no intention to leave my company any time soon. Even if I was looking for a new job, if a company didn’t want to employ me after reading this then I wouldn’t want to work for them anyway. This may limit my career in future, but it’s something I’m willing to take the risk on.
There is a problem though and it’s my family. I am not sure I am willing for them to know how I really feel. I don’t want them to worry. I know my partner reads this already, but with my parents I am even more economical with the truth. I have never been open with them and I’m not sure I’m ready to start. I guess it is doubtful they will ever google me and find this anyway, but it is still a risk.
I realised though recently it’s not even that which is the main problem. It’s actually the stuff about my sexuality I’m most scared about. I thought I was comfortable with it. I thought I’d worked through everything a few years ago when I really went through a crisis of identity. I haven’t. I am fine with coming out knowing the people I am talking to are open minded, but I am not so sure about the rest of the world. More specific I’m not so sure about those closer to me. It doesn’t hurt if some stranger says something horrible, but if it’s someone I know it’s different. I know my mother can be quite homophobic and I suspect her opinions on bisexuality are even worse. I don’t want her to find out. I have always said that she doesn’t need to know and what she doesn’t know won’t hurt her. I suspect other members of my family would be even worse. I just don’t think I can face it.
I realised the other day that I’m not as comfortable as I’d like with my sexuality in general. The other night I was at the pub with a friend and somehow we ended up talking about gay couples. I mentioned a girl I know who used to be in a gay couple and she now goes out with a bloke. She made some comment about him “turning her” and I pointed out that she could be bisexual. She seemed a little taken aback by that and I didn’t know what to say really. It could have been the time to be honest myself, yet I was uneasy with her reaction. I wish I was comfortable enough to be completely “out”, but I guess I’m still not there.
I guess I could always go back and censor myself. I could make any mention of my sexuality private and I’d be safe, yet I don’t want to. I guess I could throw caution to the wind, face my fears and all of that, but I’m not sure I can do. I don’t know what to do.
Freedom is regret…
I’ve had the New Post page open all day, yet I’ve still not written anything. It is weeks since I last wrote a proper post. I still have a lot I want to say, but the words just aren’t flowing at the moment. They run around my head in a flurry of thoughts, but I can’t seem to convert that stream of conciousness into type.
I don’t really know how things are. On some levels I am improving. I am functioning a lot better and have been a lot more productive lately. I am doing things, going places. In many ways I could maybe even pass as okay. On a good day maybe even well!?
I’m enjoying Creative Remedies more than I expected and it is proving good to get me out of the house. I have been working on the website for them and I am quite pleased with the results. I struggled at first with concentration but I managed to get it together in the end. It just takes me longer to do anything these days. My brain just isn’t what it used to be. My thinking has slowed down and my memory and concentration aren’t there. I do wonder how much ECT has affected my thinking power for life. I wonder if I’ll ever be able to work at the level I used to be at.
I have had a little more freedom of late, which I guess comes from people thinking I’m a bit better. I’ve got the bus to and from Creative Remedies a couple of times and spent a little time wandering around town on my own or out with the Creative Remedies folk. It feels good to be out and about. It feels good to be out with others, not just my bloke. It feels normal. It isn’t normal to not be allowed anywhere on your own.
I’ve also had the odd evening at home whilst my partner has been out. This week, I’m even spending three days alone, whilst he’s doing some contract work for his old employer. Time alone is never easy though. I wish it was. I both relish and dread it. I look forward to the freedom and the time to do as I please, but dread the thoughts it generates. There is the constant wish to “make the most of the opportunity”. The thoughts that I should just get on with it and kill myself. Getting through each period of time should be an achievement, but it just fills me with regret. Regret that I didn’t take the opportunity. Regret that I’ve failed yet again to end my life. Regret that I didn’t even try.
So of course, nothing has really changed. The bottom line is I still wish I was dead. I still think about making that wish a reality, every single day. I still struggle to get through a day without hurting myself. I don’t know if this is ever going to change. It feels like it has become the norm. I think it would be strange not to feel like this.
On the outside I may be improving. I may be functioning better and superficially at least I seem okay, but the inners are still faulty. I am frustrated that despite any improvements I still feel awful most of the time. I am coping and I getting through each day, but I don’t know why. I am frustrated that my thoughts still race, the impulses are still there and I still want to die. I don’t want to give up on recovery, yet I find it so hard to keep on.
Mind Spinning…
I have so many potential blog posts spinning around my head. So much I want to get out of here. I keep seeing things I want to comment on and I just don’t seem to have the time or the means to articulate the things I want to.
I don’t really know where to start and I don’t really have time to start. I wish I did.
By the time I get around to writing what I want to, no doubt the moment will have passed. I wanted to comment on the Kerrie Wooltorton case. I wanted to comment on The Conservative party’s proposals to “Get Britain Working”. I don’t know when I will find the time.
There are personal things I wish to say too. I am unsure I can say them here. I feel torn between the need to share and the need to hide. I feel torn between honesty and not wanting to worry people.
There is one other debate I’m having at the moment with myself. The question of anonymity. I have written about this before, but it’s all about the balance of being honest and open about my illness and wanting to hide things and protect my family from the worst of it all.
If you know much about me you could probably find my blog. For example, a search for “Creative Remedies” puts me in the top 5 results on Google. Knowing just a few basic facts you would identify me from reading here. I guess this just makes me wonder if I should be done with it and stick my name on here.
Anyway the short window of time I had to write has come to an end. I’ll be back soon.
No more driving…
So today I finally got the letter. You may remember I had to notify the DVLA about my condition. My license has been revoked. I have to return my license in the next week and will not be able to reapply until I have been “stable” for at least three months. I may not have driven for a year now but it is different to know I don’t have a license. There is one benefit in that I can now get my free bus pass. I had to wait until I had proof of refusal before I could claim.
Today I was running a Rethink Tea Party. I barely slept all night worrying if we were going to raise anything. The first hour or so was terrible. We barely sold anything, but things picked up when we went for a wander around the village to sell some of our cakes. In the end we managed to raise over £180, which was great. I’m so relieved!
Discharge…
So it is official. I am being discharged from The Priory by Dr G. I contacted her yesterday about the outcomes of my NHS appointment and her secretary called me back to say she will sort out the discharge paperwork and copy all my notes to send over to the CMHT. I knew it was coming, but it was still a little weird to know the decision has been made and put into action.
I am really going to miss her support. In a couple of days it will be a year since I first met her and a lot has happened in that year. She has been there through everything and has done her best to help. I wouldn’t be here by now if it wasn’t for her. On many an occasion my promise to her to keep going has stopped me acting. I am not going to say I’m grateful for that, because I still wish I wasn’t here, but I am sure my family are grateful.
Mood wise I’ve come back down from last week. Things started to calm down on Friday and by the weekend I was back to numb, monotonous depression. I’m missing the buzz from last week and disappointed that the promise of hypomania hasn’t been fulfilled, but in a way I am glad it is over. Impulsivity is always a real risk when I am wired like that. The flat depression isn’t fun either though. I am so bloody bored of feeling like this. Able to function, but wishing I wasn’t. Stuck in some kinda half-existence, where I go through the motions but feel so little and care even less. In a way it is better to feel worse, because at least then you are feeling something.
Today I was interviewed for local radio. Next week they are focussing on mental health in the run up to World Mental Health day on 10th October. The BBC came to Creative Remedies this afternoon as they want to feature the scheme on one of the shows. I was a little surprised when the staff asked if they could interview me. I had no idea what I was going to say, but managed to get through it and hopefully with a little editing I will sound half-coherent. I’m not quite sure why the outreach team picked me as I’ve not been going for long, but I guess I come across as fairly confident and talkative in sessions, where as a lot of people are quiet and reserved.
The team were asking me about ideas for advertising and improving the scheme. There are a lot of things they could do with it so it will be interesting to see how things go and what suggestions get implemented. They also want to set up a website about the sessions and to have somewhere to display our work. Of course I have experience in that area, so it looks like I’m going to work on that with P, one of the outreach workers. I think the team are quite keen to make use of my skills!
Not much else to report. Life goes on.
Pathways to Work…
A couple of days ago I got a letter from the local jobcentre asking me to come in for a “Pathways to Work” interview in two weeks time. The Pathways to Work scheme is designed to get people of incapacity benefits (IB or ESA) and back into work. It is geared at people who do not have jobs and the support offered is all about work experience, improving skills and finding a job. For someone who already has a job but is just too unwell to work, this is obviously a complete waste of time.
The literature that came with the letter was even more frustrating. There were a number of “success stories” of disabled people who had successfully got into work through the Pathways to Work scheme. The disappointing thing was all of these people had got minimum wage jobs in local supermarkets, washing dishes in kitchens or working in DIY stores. There were no teachers, lawyers or accountants. No doctors, nurses or IT consultants. No one was in a managerial position. Everyone was in a basic entry-level role, with few prospects for career progression and no doubt earning very little. I know for some people, a job in a supermarket is a massive achievement, but for many it is a massive step down. Not everyone on incapacity benefit has had a poor education or learning difficulties. Some of these people are highly intelligent, highly employable and have been previously very successful until they became ill or disabled. Surely these leaflets are not providing a positive image of disability? The leaflets should be saying, “look, you’re disabled but that doesn’t mean you can’t be successful and get a great job”. Instead they seem to say, “Oh, you’re disabled so you are obviously only capable of stacking shelves in a supermarket”. It is as if disabled people aren’t worthy of aspirations and successful careers.
This poor image of disability is reinforced by the services offered. Improve your CV. Training opportunities to improve your skills and employability. Work placements and buddy schemes. Money for attending job interviews. All of these things suggest that disabled people aren’t employable and need all the help they can get to find a job. Disabled people clearly aren’t capable of thinking for themselves and writing their own CVs. It may be true that in the current climate everyone looking for a job needs help, but this all seems very patronising and demeaning.
The other impression you get from the leaflets was the familiar story that people on incapacity benefit should just pull themselves together and get to work. There was a real sense of the Government’s displeasure about people being on disability benefits. On the first page it states that Pathways to Work is a key part of the Government’s plans to get one million people off incapacity benefits by 2015. Is it really feasible that one million people will recover from their disabilities? In theory it would be great if one million people became well enough to get back into work, but to me, the answer is not Pathways to Work. The answer is improved health care; quicker access to therapy for mental health patients, shorter waiting times for knee or hip joint replacements, more research into treatment for conditions like fibromyalgia, MS and chronic fatigue syndrome. People need successful treatment and support that will help them to recover and manage their condition. Help finding a job or gaining work experience isn’t going to make them well. Yes, working can improve well being and confidence, but for many it is just not an option.
A little speedy…
What’s this? Another post!
My mood today has been strange. I woke up this morning with my head racing, thoughts flying all over the place, a preoccupation with work and a desire to do a million things and make a million plans. The verge of hypomania, somewhere I’ve not really been for a while.
The preoccupation with work is strange. I dreamt about going back to work and woke up thinking about all the things I could be doing if I was there. I miss it. I wish I could go back. I have projects I want to get on with.
This speedy mood has been coming and going all day. Concentration coming and going. Thoughts racing.
At Creative Remedies I think I was a little high and probably a little annoying. Talking too much and I was getting bored of my painting too easily. I didn’t know what to do with myself.
Even now I’m jumping from one sentence to another and not even finishing paragraphs.
I wonder where this is going. I’m praying for it to be the end of my depression, yet the rapidly recurrent suicidal thought intruding into the rest of my thoughts suggests it isn’t. It definitely feels like the closest I’ve been to a “good” mood, even if my head feels like it’s spinning too fast, but there is still that dangerous, destructiveness mixed in. I don’t know where I am. I expect this is just rapid cycling showing its head and no doubt it will be gone as suddenly as it arrived, but we will see.
At the moment my mood isn’t physically obvious, but my mind feels like it’s being thrown about and shaken up. I am keeping the agitation down, but I don’t know how long that will last. I am trying to keep myself in check.
Tomorrow I have my ESA medical. I’m worried. I don’t think this mood is going to be helpful. I can’t really think and don’t know how to describe my worst days. I don’t think I seem depressed, which isn’t going to help. I guess I’m there for bipolar disorder, not depression, but it is the depression that stops me working. I don’t even know if I want to have “limited capability for work”. The way I’m thinking at the moment I want to go to work.
Argh!