Posts Tagged ‘illness’
Am I Being Fair…?
A question that is plaguing me and my relationship at the moment.
My partner has been objecting to what I’ve written about our arguments lately. I am not sure he appreciates me writing about our relationship in such a public, but one-sided way. Maybe it is unfair to expect him to sit back without the opportunity to say his piece, but I need somewhere to work all of this out. I need to know if I am making sense. I need someone to listen.
He is of course right that I am only showing my side of the story and I am not giving him the opportunity to defend himself. Maybe I could let him write his own post, give his own argument, but I’m not sure it would be suitable for publication! ;) It is true though that much of what I have written has presented the facts and I am not trying to criticise or upset him with these posts. He did indeed call my illness a “stupid teenage fantasy” and does indeed make little snide comments about my blogging, so he cannot argue with that.
He tells me though that I do not realise how much the things I write hurt him and that I shouldn’t portray him as some big evil monster. I don’t mean to do that. He isn’t. We really do have our problems at the moment, but I don’t think he acts with any malice. I don’t think he gets any pleasure out of annoying or hurting me. He just doesn’t know how to deal with everything that is going on. I’m pretty sure he genuinely tries to understand better, but I am just not sure that it works.
One thing he said was that his sulking is not in any way aimed at me. He said that when he read about me stopping my medication he was really angry and that when he went off to sulk he wasn’t trying to manipulate me, he was just taking time out so he didn’t do or say something he may regret. That seems fair enough. There are times I have to take myself away from a situation. The problem is though I am unsure. Even if he doesn’t mean it that way, it still puts me on the back foot and makes me feel guilty. Of course he says that is my problem and that I shouldn’t think everything is about trying to hurt me. I guess it is my own fault for feeling guilty, but perhaps he should find another way of staying in control and maybe he shouldn’t give me the cold shoulder when I try and find out what is wrong.
When I said that our long conversation (argument) on Saturday night didn’t get us anywhere he was upset as well. He felt it did help and that we were getting somewhere. He argued that I am always seeing the negative in things and that we’re never going to get anywhere if I continue with that attitude. Yes, we did say things that needed to be said, but I am unsure if we actually got any closer to finding a solution. I know that he was trying though.
We had another one of those conversations on Sunday night. He said he’d been making a concious effort all day on Sunday not to make the biting comments I find so frustrating, yet I can’t say I noticed an improvement. This confuses me. Are things really not as bad as I think they are, but because of the negative nature of depressed thinking I am feeling things more acutely? Am I just making things up to taunt myself with?
We seemed to spend a great deal of time discussing the merits of twitter. I do think things have escalated on the blogging-hatred front since I started using twitter more regularly. You may remember that I wrote a blog post about my feelings on twitter about a month ago. I myself was sceptical of its merits, but I have come around because I do genuinely think it is helpful and dare I say it? I enjoy it. I enjoy being in the middle of discussion between an interesting group of people. I like the fact that twitter is taking my blog to new audiences. I like the fact it is quick and I can log my thoughts without having to dwell or develop them.
One of his arguments was that 140 characters is far too little to say anything constructive. I thought that too at first, but I am amazed at what you can actually convey through a few short messages. Thoughts after all aren’t logically constructed into sentences and paragraphs when you have them, so sharing a few snippets can still get across the same message.
His other was that he doesn’t understand why I want to broadcast little snippets of info to a bunch of strangers. He doesn’t really understand why I want an audience on my blog. I know I didn’t really start writing this for an audience. I started as I hoped it would be therapeutic, but I have found it helpful, interesting and encouraging to know there are people out there that care. I have met people who I do genuinely count as friends and I have received a great deal of useful advice and support. I wouldn’t get all that from a paper journal hidden under my bed.
As for twitter and an audience. I only really intended it to be aimed at my blogging audience. Little extra snippets of information for those that already read. Little updates for when I don’t have the words for more. It has developed into a new outlet though and also a new source of readers to this blog.
We also talked about me and my illness. His main argument was that I do not try hard enough to get better. This is an argument I hate, because it implies such a lack of understanding about mental illness, that I thought I could have changed by now. It doesn’t matter how hard I try, it isn’t going to take this illness away. I may be able to ease some of the symptoms, but that will be as far as it goes. Yes, I know that lifestyle changes can be useful and I even know that eating better and exercise can help, but it is not a panacea. The eat better, exercise more, be a better person stuff just doesn’t wash.
He is worried that I am pinning all my hopes of recovery on finding a wonder drug and/or therapy and that I am not going to do anything myself to get better. I am hoping that one day I will find a cocktail of medication that helps. Most of the people I know that have had some recovery have been aided in that by medication. It is often pointed out at The Priory that you should take a three pronged approach to recovery: medication, therapy and lifestyle change. By pinning my hopes for recovery on therapy and medication I am not being lazy, just realistic. I would also hope that the fact I have hopes for therapy (when the NHS finally get their ass in gear) does suggest I want to do some of the work to get better myself. Therapy is far from an easy process and involves a great deal of hard work, work which I am going to have to do.
As an example of how I am being lazy and not trying hard enough, he says that I haven’t done anything to improve my sleep, except take a few pills. I have tried medication, but I’ve been through the sleep hygiene stuff too. Admittedly I’ve made less effort in recent months, but only because I have given up hope. I have spent years swinging between hypersomnia and insomnia, although in recent years I’ve been firmly in the insomnia camp. I have tried all sorts of things and nothing has succeeded in restoring “normal” sleep. What is normal is questionable anyway, because there are times when 4 hours is fine, other times when 4 hours is no where near enough and even times when 4 hours feels too much. Sometimes I can have 2 hours sleep and feel fine. Sometimes I can have 2 hours sleep and feel awful. Other times I can have 7 hours sleep and still feel exhausted. I guess it’s all linked to mood, but I guess it also means my sleep will never be great.
He suggests I need to follow more of the CBT and self-help stuff we went over at The Priory. Setting myself a routine and activity scheduling. I do need to get back into a routine, but it is understandable that things go haywire over Christmas. I know activity scheduling was something that was always encouraged at The Priory, but I never really found it helpful. I also worry that this is just another means for exerting control. He can try and make me follow a routine he approves of and if I don’t stick to it, then he can get angry and tell me I’m not trying hard enough.
His latest suggestion is that I only use the internet/blog in the evenings to try and contain the time I spend on here, but I fear this is merely so he will be around at the time I’m doing it. Of course him being around will mean I will spend even less time on here because the automatic guilt-trip will be triggered and secondly, he will be able to keep an eye on me whilst I do it. When I tried to go online this morning, forgetting this had been suggested, he got angry at me and told me I was only allowed online at night and that I should do as I’m told. I had never agreed to following his suggestion, yet he was determined to enforce it. I am not sure I’m comfortable with his assumption that I will do as I’m told
I can’t remember what else was discussed on Sunday. I don’t exactly enjoy the arguments and I have found my short term memory seems to be pretty selective. Some of the bits that provoke the strongest emotion and reaction stick, but the rest slips through my hands like sand.
I do remember that I gave up before the bloke was ready to stop. I couldn’t take any more of the argument and at 2am or whatever it was I was too tired to discuss anything properly. He was annoyed at this, but I couldn’t help it. I didn’t want to start the discussion then anyway. It would be a lot easier to talk about such things when I’m actually functioning properly.
The thing is now I am confused and conflicted. I wonder if I’m being fair. I wonder if this is all my fault and if I am overreacting. I wonder if I am just seeing the negatives all the time. But things have got to the stage now that I am always suspicious of his motives. Is he trying to make me feel bad so that he can control me? Is he trying to guilt trip me into compliance? Is he just saying all of this to get his own way?
I wonder if anything will ever change. I really don’t know what to do.
Alison suggested on my last post we had some time apart and it is something I have thought about a lot myself, but I do not know how feasible it is. I hope that him going back to work will help. At least it will give us a few hours space. His cold is now improving, but his attempt to get to work this morning proved futile due to the snow. Both routes out of the village towards Warrington were difficult – one impassable and one almost so and he didn’t want to get stuck on the way back, so he turned around and came home. Unless it dramatically warms up overnight there’s little sign of him getting there tomorrow either. We’ve had another couple of inches since he got home this morning.
Even if he does get to work soon, a few hours apart probably isn’t going to be enough to help. Would a temporary separation be useful? It might make us realise what things we miss about each other and it might give me some space to get better. Our relationship was once long distance and it is true that absence makes the heart grow fonder. I just don’t know if he’d be happy about it and I don’t even know if I could. Things are not good at the moment and I wonder how Dr N and the CMHT will react if I am on my own. I wonder how I would cope. I worry that I would end up in hospital, perhaps not because he would get me sectioned or maybe even not because I couldn’t cope, but pretty much because there is no where else for me to go. I can’t exactly go home – my support is up here and I’d go mad after a couple of days with my parents anyway and I don’t really have any friends I could stay with. I don’t have anywhere else to go.
As has been mentioned before, I don’t think I am well enough to make any big decisions on our relationship whilst I am still in the acute throes of this illness. I am pretty sure things would be a lot easier if I was well. My illness has skewed the power relationship and I think that has escalated the worries about control. I think he wants to control me, because he wants to keep me safe. I am in a weakened position naturally, because he is my carer and ultimately if he wanted me in hospital he could make it so. Before I was his equal and I had things of my own and they gave me freedom. I had my career and my work friends, both of which I have lost through illness. I find it hard because I don’t feel I have anything of my own any more and that only adds to the feeling that I have no freedom anymore.
Admittedly we argued before I was ill, but it is true that arguments are a fact of life in relationships and things have been so much worse lately. The problem is, I can’t really remember the good times. A combination of depression and the effects of ECT means they’ve pretty much gone. I can barely remember our engagement. It makes it very easy to think that our relationship is all bad and maybe it should be over, when really things are just a little difficult at the moment and there is a lot going for us. NYE was our 7 year anniversary. That’s a long time and we must have been doing something right to get this far.
You would be forgiven for reading this post and thinking that our relationship struggles are the only thing going through my mind at the moment, but they are not. These struggles are the thing which I feel most able to write about, but on top of all this there are other struggles going on. I want to write about them, yet I am scared about doing so. The depression is pretty intense, but the agitation is back again and the only respite I have is my appreciation of snow. I love snow and it has been a welcome distraction from the worst of my thoughts. Sadly I know that as the snow melts that respite will disappear and I will be left with the misery that fills the rest of my mind. I do not relish that thought.
Difficult…
Things are really difficult right now. I’m going mad spending too much time in my partner’s company. We’ve been in each other’s pockets for a couple of weeks now over the festive period and I don’t think that is helping matters. The lack of time to myself, to do as I please without question or comment from anyone else is driving me mad.
I’d been pretty much counting on the fact that everything would all go back to “normal” tomorrow, but sadly it will be more for this for a little while longer. We are both still full of cold and as such my bloke won’t be going back to work tomorrow as planned.
Last night was long and painful. We tried to talk, but basically argued solidly for hours, long into the night. It was one of those conversations that got us no where, but took us to plenty of painful places on the way.
I want to write more, but as such I’m under the same continual pressure. I don’t know when or if anything will change.
Thoughts, Thoughts, Thoughts…
So I’ve not been sleeping well the last couple of days. A nasty cold combined with racing and distressing thoughts is tiring me out. I was wide awake last night for hours and hours and no matter how much I tried I didn’t seem to be able to switch off. Eventually my cold must have defeated me and I got a couple of hours of broken sleep, only to wake up to the sound of our dog whimpering and a continuation of the thoughts.
My mind had been fairly still and quiet over the past couple of weeks. My mood was that of low rumbling depression, hidden under a façade of festive cheer. My thoughts have been dark, but calm and slow. It made a change to the agitated depression that had been the main feature of 2009.
It seems though with this cold, my thoughts have quickened. I feel as if I’m in a quiet turmoil, with ever-racing thoughts bubbling under the surface. I start on one thing and it gives me a hundred leads to follow, all in turn leading to more. The thoughts circle and spiral out of control. I can’t get a hold on them.
I store my thoughts up for the night-time, trying to maintain a semblance of normality during the day. Being ill with this cold though has allowed me to stay in bed and I can drop the pretence of normality a little.
I need to untangle everything and write it all down so I can try and make sense of it all, but it would take me hours, days even. I could probably write 10,000 words and still barely scratch the surface. I suspect my bloke may be justified in his complaints if I tried to blog all of that. I’d like the chance to blog some of it though.
I feel so alone with these thoughts though. I don’t know who I would share all this with. I can’t work it all out, let alone express it to others. Some of these thoughts are thoughts I can’t bear to share. Some of these thoughts I desperately want to share, but I am unsure if it is wise. Some of these thoughts are too confusing to know what to do with. I alternate between wanting to share them and thinking it is a very bad idea. Instead they all go round and round in my head and I’m too scared to let them out.
I did actually try and share a few things with Dr N on Thursday, but that has only amplified my confusion. By sharing my thoughts, I have made them real and that has only made them stronger. This just makes it harder for me to tackle the rest.
I don’t really know what to do.
This argument is still rumbling on and I don’t feel strong enough to resist right now. I need time to write, but I feel too guilty for it. The pressure is on for me to get off my laptop and “go and do something useful”, yet I can’t summon the energy for that either. I wish I could hibernate and wait for this to blow over.
Disappearing Posts…
Some of you may have noticed that my posts disappeared yesterday for a while. My bloke and I had an argument and in order to hurt me, he signed into here and deleted my blog. Thankfully he had the nouse to back it up first, but I was still upset and felt violated.
I saw Dr N this morning. As always it was good to see him. He always gives me time and is understanding. We talked about various things, including the arguing and anger, work and the CMHT. I got my script and I now have my melatonin so here’s hoping I get a decent nights sleep soon.
He is still keen for me to go back to work, but I just don’t know how I can. I am still as low as I was last May when I was signed off initially. I can’t handle even the smallest thing and I just snap and lash out. I’m worried the stress would tip me over the edge and I’d end up hurting someone or killing myself. Last night I dreamt I was at work and I hit my old boss. It was horrible. I hate that vision of myself and worse, I know it is close to reality. I suspect I wouldn’t last a week, even on part-time hours. I really don’t want to go back before I’m ready, yet I don’t know if I will ever know when I’m ready. The longer I leave it, the harder it is getting.
I am getting frustrated at being left behind and the way this illness has ruined my career. If I’d been well I’d be promoted this September. I am being left behind by my colleagues that started with me. Even worse, people that started after me and who were not as good at their job as me are being promoted ahead of me. I feel like a failure.
I fear returning to work and people’s thoughts about me. I fear the questions about my absence. I fear people’s confusion over why I’ve been in the company over 2 years, but have not been promoted to the next level. I fear people will think I’m useless because of that.
So far I’ve had some fairly negative reactions to my time off from work due to illness and that both upsets and worries me. I feel that I’ve lost people’s respect. What if I can’t find a new project because every manager is too worried about my sickness record? What if they treat me differently?
There is part of me though that is dying to go back. I want to get out of the house and start my life again. I want the freedom and independance that work will give me. I want the social life that work gave me. I want the daily routine. I want a reason to carry on. I’m fed up of this illness ruining my life. I want to go back and be better than ever.
I know that going back would not be the same. I loved my old job, but this wouldn’t be my old job. I will be working on a new project with new people. At first I will not even be on a project, which will be strange and difficult. I don’t want to return to a watered down version. A phased return would be painful for me, even though I know it is for the best. I want an exciting project and want to be in the thick of things. I don’t want to do pointless activities for the sake of it. I don’t want to be stuck in the Manchester office all the time. I don’t want to be learning how to do my job again. I am worried I just won’t be as good at it as I used to be. I am not as sharp and find everything so difficult.
When I went back to my old role for a few days last August, I found it unbearable not being able to do my old job. I found it unbearable knowing that someone else was now in control. I won’t be going back to the same project this time, so maybe that won’t be a problem, but then I’m scared about starting over again with something new.
There are also the small issues of the finance side of things. If I go back my permanent health insurance would be stopped. Initially it is complicated as I won’t be working full hours, but I’d be on some form of pro-rata pay. Also I’m currently applying for ESA. If I tried to go back to work and found I couldn’t manage it, I wouldn’t be eligible to claim again for another 28 weeks. It’s not exactly an incentive to try and go back before you are ready.
I guess we shall see what happens. I am signed off for another 6 weeks or so anyway so won’t be deciding before then. Dr G said yesterday she doesn’t think we can consider it until at least the end of September and I’m not sure I’ll be ready then. I will also have to attend an Occupational Health appointment before they let me back. OH of course might decide that I’m not well enough anyway.
Another Bad Night…
Last night was just another bad night of many recently. I couldn’t sleep, mainly because I felt physically awful, but also because there was a lot rolling around my mind. Little positive unfortunately.
Morning rolled around and I still felt terrible, so forcing myself out of bed really didn’t seem like a good idea. I just couldn’t face more therapy on top of the dizziness and stomach ache I was struggling with, so I decided not to head to The Priory today. Art Therapy this afternoon had been cancelled anyway as the therapist is away.
Afternoon arrived and I got up, but could only manage an hour or so before escaping back to bed. I had to get up eventually though mid-afternoon as there were things that needed doing and I had an appointment with my GP, Dr N.
The appointment was similar to usual. I wasn’t honest enough again, but I don’t know if I need to be anymore. They seem to realise that things are pretty bad. He asked me if I wanted to get better, and although I do, I confessed I sometimes find it hard. I just want everything to go away. He told me to stay safe. I wonder why they keep telling me that.
He gave me my scripts. 2 weeks this time, but he basically told me that 2 weeks of my new baby starting dose of Lamotrigine (25mg) is not enough to hurt a cat, let alone me, so told me not to bother. The silly thing is I’d already checked and knew that.
Tonight, I’ve been left alone whilst my partner is out for a few hours. I should feel the freedom and relish it, but I am just left disappointed that I feel so physically crap I can’t make the most of it. I am also bound by the dog and the fact my car is at the garage (even worse than not knowing where my keys are). I took the dog for a short walk, but didn’t feel very well doing it. My head was spinning and the strain of trying to get a 16 week old puppy to go where you want to was getting to me. I just wanted it to be over. It’s stupid that things like that left me not just wanting the walk to be over, but wanting everything to be over. That is the way things are at the moment.
Earlier this week, I had a plan for tonight. A plan I’ve not been able to realise. When asked if I was going to be safe on my own tonight I had always said yes. When asked if I had a plan and had set a date I had always said no. The truth was, I had a plan and today was the date.
All last night I was thinking about it. All last night I was thinking about whether or not it would work, whether there were any better options, whether or not I’d feel physically up to carrying it out, whether or not I’d be mentally up to it. I guess it is no wonder I didn’t sleep very well.
Today though has not gone to plan. I was missing some of the means and the physical strength to do it. I think it is hard to think about doing anything when you feel so physically crap that all you want to do is go to bed.
I am left disappointed and sad. I am left frustrated. I still wanted to do it tonight. It is too late now, but I find myself regretful. I should have done it. I should have just stuck to the plan. I feel weird. I didn’t see a future beyond today, so tomorrow will be strange. A day that I had not intended on seeing. I don’t know what to do with it.
London Bound…
I’m traveling down to London this weekend for a friend’s birthday. I’m sat in the first class lounge waiting for my train at the moment. I am glad I booked a first class ticket. It’s far more civilised than cattle class.
I’m a little apprehensive. I had to promise I would keep myself safe this weekend and although I said I would, I don’t know if I can 100% guarantee that. I hate that I can’t promise and know for sure, hand on heart, that I will be safe. There is no guarantee that I won’t flip out and do something impulsive, but I’m hoping I won’t. I know I am putting myself in a situation where the temptation could be there, but I know I need to face it. My nurse on the ward would talk about empowerment and how I have to face it. I know that I’ve been okay up to now since I left the ward and I just have to keep it up, but this is my first weekend away on my own, so I hope it goes okay.
I looked at my thoughts around this in my CBT group this morning and it was helpful. The therapists worked with me to come up with some ideas and plans to put in place to make myself safer. I just wish I didn’t have to do that. I resent it. I did find the session helpful this morning. I just wish there wasn’t this negative commentary in my head counteracting every rational and sensible thought I have and making me want to rebel against the safety measures. I’m going to try and help myself. I really am, but I have to fight to stop my mind from undermining me.
The weekend should be enjoyable. I hope my depression doesn’t make that impossible. I will be staying with good friends and we have fun things planned. I just hope I can feel the enjoyment and not be too negative.
There are a few pitfalls I have to avoid. Tomorrow, I will see a lot of my work colleagues that do not know that I am ill and have been on sick leave for six months. They will be asking questions of me. What client have I been working on? Why wasn’t I at the last conference? etc. and I will need to respond. I think most of them are fine and I will probably be honest with them, but it still might be a bit weird. I certainly don’t want to bring the atmosphere down and talk about my illness when we should all be partying, but then I will have to give my justification for being very careful on the drink front. Just one or two makes me drunk on these meds and I know it does nothing for my mood, so I need to be careful.
I hate this illness. I hate how it means every situation needs thinking about. The risks need to be considered. I have to think about how I am going to keep myself safe. I wonder if I will enjoy things, when usually there would be no question. I worry about the consequences of things. I have to think about what would be best. I resent having to keep myself safe. I hate the fact that I don’t 100% trust myself. I hate that my partner doesn’t trust me and worries about me. I hate that my friends feel they need to keep an eye on me. I don’t want to be a burden and someone that needs to be looked after. I don’t want to think about these things.
I should be back on Monday.
From next week my therapy days change. I will be going Tuesdays and Fridays as opposed to Monday, Wednesday, Friday. There is an extra day to face, but I know I just have to do it.
Past Lives…
Over the last couple of days I’ve been reading a lot of my old online journal entries. It’s weird to read back. I have forgotten so much. So many of my entries talk of nightmares, insomnia and mood swings. I blamed hormones back then, but it does make me wonder; was this just illness, unnoticed? I have posts describing agitated depression right back from being 15. I have other posts describing hypomania, yet I did not know to call it that at the time. I just thought I was happy. Other posts are melancholy. Most of them are monotonous, repetitive and boring, but there is some interesting stuff too. I wonder what my psychiatrist would make of my old diaries. I am going to copy out some of the key entries for my life map. I think it will help to flesh it out with my own descriptions of events from the time, rather than my retrospective ones. I’m cautious about medicalising my teenage mood swings though. I don’t really see how I can put them down to anything but the natural course of adolescence.
Aside from that, I’m not sure how I am at the moment. I was a little on the agitated side again yesterday. I struggled to stay still or focus in group and felt a bit irritable, but generally manageable. Today, I have spent a lot of the day in bed and just been cleaning or reading stuff online. Not exactly a productive day.
I am still a little on edge. I am just waiting. Waiting for things to change. Waiting for someone to help. Waiting for someone to tell me what’s wrong. Waiting for the medication to work.. Waiting to feel better… or worse. Waiting to see what happens next. I just don’t know what’s coming and I don’t know how long I can keep waiting. It’s all the same. It is all so pointless. Why am I waiting?